tag:blogger.com,1999:blog-2129943063330427887.post6344266024289594534..comments2024-03-29T11:40:14.992+00:00Comments on WEMBLEY MATTERS: Save the Brent Sickle Cell ProjectUnknownnoreply@blogger.comBlogger16125tag:blogger.com,1999:blog-2129943063330427887.post-82143223026914856912016-08-26T07:41:01.018+01:002016-08-26T07:41:01.018+01:00They wouldn't shut down the Cancer clinic but ...They wouldn't shut down the Cancer clinic but anything for black people they closedown without thoughtAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-2789678803632296332016-08-20T20:53:54.779+01:002016-08-20T20:53:54.779+01:00Anon 20.10
Just to put that into perspective, the ...Anon 20.10<br />Just to put that into perspective, the CCG calmly squandered £50k (of OUR money) on consultants, Coulter and Co. to get rid of the challenging Engagement and Equality Committee.<br />A case of 'if you don't like the message, pay a management consultant to shoot the messengers for you'! <br /><br /> Nan.noreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-62533798796336986872016-08-20T20:45:05.813+01:002016-08-20T20:45:05.813+01:00Great sentence Ravi, that neatly sums up the CCG&#...Great sentence Ravi, that neatly sums up the CCG's entire PPI (public and patient involvement) strategy - <br /> "Brent CCG considered that the path of least least resistance would be to encounter...the least possible resistance, and scheduled its meeting time accordingly." Nan.noreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-55513367552693924562016-08-20T20:10:40.466+01:002016-08-20T20:10:40.466+01:00It appears that the CCG is only interested in cost...It appears that the CCG is only interested in cost and not people and their health issues. This behaviour is very much about targets and short term results, this why we have a failing NHS - too many results based approach and no genuine care.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-8567689053327143402016-08-20T19:45:17.421+01:002016-08-20T19:45:17.421+01:00Where is our MPs?Where is our MPs?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-50514544648944269142016-08-20T19:26:08.961+01:002016-08-20T19:26:08.961+01:00Irie they would never close down a Project in Hamp...Irie they would never close down a Project in Hampstead.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-50091140808381978812016-08-20T18:27:50.325+01:002016-08-20T18:27:50.325+01:00"Brent CCG regrets it has no money (or though..."Brent CCG regrets it has no money (or thought) to schedule the meeting in Stonebridge or Harlesden for the convenience of a vulnerable group of patients."<br /><br />Roughly translated:<br />Brent CCG considered that the path of least least resistance would be to encounter...the least possible resistance, and scheduled its meeting time accordingly. <br /><br />The reality, unfortunately, is that policies regarding debilitating health conditions, are seldom formulated by people who either have those conditions, or by people who have to spend days out of their week, being shunted from one clinic to another, sitting hours in a hospital waiting room, in order to have their hurried eight-or-so minutes with a consultant.<br /><br />Until this changes - and there is very little prospect of that - the suffering of the victims of this disease will find unfavourable balance against the possibility of someone, or some committee, being seen to be saving money for their organisation's budget. <br /><br />Harlesden was never Hampstead. This isn't rocket science.<br /><br />Ravi...<br /><br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-68374520727249838862016-08-20T16:57:25.385+01:002016-08-20T16:57:25.385+01:00Yep.
Hope this helped...Yep. <br /><br />Hope this helped...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-63297836761611739982016-08-20T08:19:14.786+01:002016-08-20T08:19:14.786+01:00Is it because I'se black?Is it because I'se black? Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-41190032064200376102016-08-19T17:45:21.082+01:002016-08-19T17:45:21.082+01:00Quite right, Philip, on all fronts.
A fellow pati...Quite right, Philip, on all fronts.<br /><br />A fellow patient rep who attended the CCG meeting said afterwards, that the Brent Council public Health rep on the Governing Body said flatly that the council had no money to support a project.Nan.noreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-51930250251206442332016-08-19T17:12:39.599+01:002016-08-19T17:12:39.599+01:00Thank you for giving this issue publicity, Nan, an...Thank you for giving this issue publicity, Nan, and for providing a link to the relevant documents.<br /><br />The report that went to the CCG's Governing Body on 6 July includes the following important paragraph:<br />'Overall the service is seen by service users as a valued and forward thinking service model that supports the management of this long term condition, in an area of particularly high prevalence. However, the agreed Key Performance Indicators (KPIs) demonstrate a level of performance that requires improving. The service provider has cited a number of operational issues which has adversely impacted on performance and delivery of the KPIs.'<br /><br />The first sentence confirms that the project, which had only been running for a year, was already providing a very valuable and worthwhile service to the people who needed it most.<br /><br />The second sentence refers to the failure to meet some of the "Key Performance Indicators", showing that the service needed to be improved, while the third sentence shows that there were reasons to show why these KPI's had not been met in the first year.<br /><br />Given the positive impact of providing the service in its "start-up" year, it is difficult to understand why it was not given at least another year to make the improvements that were needed. Instead, the CCG's Executive recommended, and the Governing Body accepted, the following option:<br />'Not to extend the pilot but explore alternative sustainable models for care for example a peer support model with Brent Council or the use of the PAM tool can be explored to support this cohort of patients.'<br /><br />It appears that the CCG wants to pass some of its own responsibility for (and cost of) the care of sickle cell sufferers onto Brent Council, whose services are already stretched, without consulting with or considering the needs of 'this cohort of patients'.<br /><br />Philip.Philip Granthttps://www.blogger.com/profile/08216646114377430489noreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-85581881893221429242016-08-19T16:09:01.208+01:002016-08-19T16:09:01.208+01:00Dear Leroy,
Herewith a Brent CCG link to the Gove...Dear Leroy,<br /><br />Herewith a Brent CCG link to the Governing Body meeting of 6 July that made the decision.<br /><br />Below that I also attach a Brent Patient Voice link to its own paper in response to the CCG decision.<br /><br />Glad to have the 'big bwoys' on board!<br /><br />http://brentccg.nhs.uk/en/governing-body/governing-body-meeting-papers/cat_view/1-publications/3-governing-body-meeting-papers/416-6-july-2016<br /><br />http://www.bpv.org.uk/ccg-asked-to-review-decision-to-discontinue-promising-pilot-project-for-sickle-cell-patients/ Nan.noreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-18458036592513970582016-08-19T13:58:21.656+01:002016-08-19T13:58:21.656+01:00I would like to read the paperwork on how this dec...I would like to read the paperwork on how this decision was made and by whom.<br />Then I will get one of my big bwoys to look into it and write a letter for me Leroy Decosta Simpsonhttps://www.blogger.com/profile/09882052324784733147noreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-90265801245865727902016-08-19T09:21:30.161+01:002016-08-19T09:21:30.161+01:00We need this CCG behavior debated in Parliament. E...We need this CCG behavior debated in Parliament. Especially if other CCG's are also behaving in this shameful way.<br />Not daft as it sounds.<br />It only requires 100000 signatures to be collected and change.org offers the mechanism to make that happen.<br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-46275945313650627422016-08-18T23:38:18.664+01:002016-08-18T23:38:18.664+01:00Thank you for publicising this Nan.
The decision t...Thank you for publicising this Nan.<br />The decision to hold the meeting away from Harlesden and Stonebridge is a deliberate and cynical act of tokenism by Brent CCG and renders the meeting as merely a 'paper exercise'. Why is Brent CCG treating this vulnerable group of patients in such a dismissive way?<br />It would appear that Brent CCG is increasingly showing itself to be incapable of performing it's functions with any degree of competence.<br />Time it was held up to public scrutiny.<br /><br /><br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2129943063330427887.post-85064903857200630672016-08-17T20:27:40.411+01:002016-08-17T20:27:40.411+01:00As if it weren't bad enough that the Central M...As if it weren't bad enough that the Central Mid A & E was closed down.....<br /><br />As if it weren't bad enough that sickle cell treatment was moved to Northwick Park, 2 buses away......<br /><br />As if it weren't bad enough the Harlesden population lives a decade less than others in Brent......<br /><br />I suppose after closing down the Stonebridge adventure playground, Brent's councillors are too embarrassed to take Brent CCG to task over this - if indeed the sleepy councillors can even be bothered about it - after all, Harlesden and Stonebridge are pretty much captive voters for them. Nan.noreply@blogger.com