Wednesday 9 June 2021

GP data share delay 'a small step in the right direction' but Brent Patient Voice says opting out is still advisable

Reacting to the announcement of a delay in implementaion of the NHS Digital GP Data sharing scheme, Robin Sharp, Chair of Brent Patient Voice said:

This is a small step in the right direction but the plans need a radical overhaul if they are to maintain confidence in the GP/patient relationship. Opting out is still advisable.

Professor Martin Marshall, Chair of the Royal College of GPs, responding to the news  of the pause that the college had campaigned for said:

We’re pleased that the Government has announced a delay to the GPDPR programme following the concerns that the College, the BMA and others have raised over the past few weeks.

It is essential that this time is used to properly communicate with the public and with clinicians so that patients and GPs have trust in the programme. In principle, improved and more secure sharing of data for healthcare planning and research purposes is a good thing. We have seen during the COVID-19 pandemic just how important the appropriate use of GP patient data is in responding to a health crisis, but it is also important in normal times to plan for better overall service provision and public health strategies, and enhanced understanding of diseases and treatments for serious illness.

We want to see a comprehensive campaign, led by NHS Digital and accessible to all members of the public, which should include every patient being communicated individually with, clearly articulating the benefits and risks of data sharing so that patients can make a genuinely informed decision about whether they are happy for their data to be shared - and if they are not, how they can opt out.

The safety and confidentiality of data in general practice is paramount to GPs and our teams. Surveys show that most patients are happy for their data to be used for legitimate planning and research purposes, but this must be built around trust. What data will be shared, with which organisations, how and why this will be done - and in particular, what safeguards that are in place to ensure data is not used inappropriately - must be communicated effectively with patients and healthcare professionals, so that they have trust in the programme.


Key EURO2020 dates for Wembley residents this summer

 

 

Euro 2020 signs are going up throughout the borough (The Paddocks) directing coaches to Fryent Way


An initial crowd limit of 22,500 at Wembley Stadium may well be increased for later dates depending on the progress of the Delta Covid19 variant and feedback from test events that were held over the last few weeks.

 


 Welcome mural at Wembley Park station



13 June 2021


Wembley Stadium event - England v Croatia

 

13 June 2021, Kick off: 2pm, Wembley Stadium, Wembley, London HA9 0WS

England v Croatia will take place on Sunday 13 June 2021 at Wembley Stadium. Event day parking restrictions will be in place until midnight.




18 June 2021


Wembley Stadium event - England v Scotland

 

18 June 2021, 8pm, Wembley Stadium, Wembley, London HA9 0WS

England v Scotland takes place on Friday 18 June 2021. Event day parking restrictions will be in place until midnight.




22 June 2021


Wembley Stadium event - England v Czech Republic

 

22 June 2021, 8pm to 12am, Wembley Stadium, Wembley, London HA9 0WS

England v Czech Republic takes place on Tuesday 22 June 2021. Kick off is at 8pm and parking restrictions will be in place until midnight.




26 June 2021


Wembley Stadium event - Round of 16: 1A v 2C

 

26 June 2021, 8pm to 12am, Wembley Stadium, Wembley, London HA9 0WS

Round of 16: 1A v 2C takes place on Saturday 26 June 2021. Kick off is at 8pm and parking restrictions will be in place until midnight.




29 June 2021


Wembley Stadium event - Round of 16: 1D v 2F

 

29 June 2021, Kick off: 5pm, Wembley Stadium, Wembley, London HA9 0WS

Round of 16: 1D v 2F takes place on Tuesday 29 June 2021. Kick off is at 5pm and parking restrictions will be in place until midnight.




06 July 2021


Wembley Stadium event - Winner Quarter Final 2 v Winner Quarter Final 1

 

6 July 2021, 8pm to 12am, Wembley Stadium, Wembley, London HA9 0WS

Winner Quarter Final 2 v Winner Quarter Final 1 takes place on Tuesday 6 July 2021. Kick off is 8pm and parking restrictions will be in place until midnight.



7 July 2021

Wembley Stadium event - Winner of Quarter Final 4 v Winner Quarter Final 3

 

7 July 2021, 8pm to 12am, Wembley Stadium, Wembley, London HA9 0WS

Winner of Quarter Final 4 v Winner Quarter Final 3 takes place on Wednesday 7 July 2021. Kick off is 8pm and parking restrictions will be in place until midnight.

 

EVENT DAY PARKING SCHEME



Tuesday 8 June 2021

EXCLUSIVE: Wembley's famous football mural will remain on public view until at least August 2024 after Philip Grant's tenacious campaign wins public support

 

The mural beneath Bobby Moore Bridge, Olympic Way, Wembley Park

 
It  turned out that  Debra Norman's letter to Philip Grant LINK  cutting off any further correspondence about the campaign to keep the football mural on permanent public view  was not quite the last word. Following Philip's persistent correspondence and forensic analysis of Brent Council planning documentation. along with emails of support from residents, Brent Council Chief Executive, Carolyn Downs, has written to Philip. 

Although the email still claims to uphold the Council's view over advertisement consent, Ms Downs has now asked for, and received, Quintain's promise that they will not cover the "footballers" mural with adverts for the rest of their lease (up to August 2024).

Dear Mr Grant,

I have spoken to both the Leader of the Council and Councillor Nerva before responding to you, as you requested.

The Council has taken your representations on this matter very seriously. It is not just Brent’s lawyers but also external legal advice which aligns with that of the council regarding Quintain’s right to advertise over the football mural.

Because the Council values the mural very much and because we have requested of Quintain that it remain on view, and because they too value it, it has now been on display for a considerable period of time and has not been covered by advertising. Furthermore Quintain have confirmed to me in writing that they do not intend covering the mural for the remaining period of the lease. 

I concur with Ms Norman that we have spent enough time corresponding with you on this matter particularly given that the mural will remain on view and that is what you have sought to achieve.

Yours sincerely,

Carolyn Downs
Chief Executive

Congratulations Philip!

 

Kilburn Square battle against over-development part of a London-wide defence of residents' amenity space

 


Kilburn Square potest over over-development threat to green space

 

An article in last Wednesday's Guardian LINK on growing opposition to London council's plans to meet housing quota by building on green space and playgrounds rang a bell with campaigners opposing plans to increase the amount of housing on the Kilburn Square Co-op council estate by over 80% with the potential loss of  much valued green space.

Keith Anderson, Chair of Kilburn Village Residents' Association, was moved to write to the Guardian on how such proposals affected this corner of Brent close to the traffic laden polluted Kilburn High Road.

This is the letter that is awaiting publication:

Harriet Grant’s article (“London councils under fire for plans to build homes on play areas” June 2) struck a strong chord here in the South-Eastern corner of Brent.

 

I’m Chair of a Residents’ Association that includes the Kilburn Square Co-op – a mature, well-balanced, sociable estate with 246 flats. Council-owned, but managed by residents. Two-thirds Council tenants, one-third Leaseholders.

 

Last October, Brent announced to some residents a Plan for an extra 180 Council flats in an “Infill” development. Infill may be accepted jargon to housing insiders; but it’s a laughable euphemism in this case. Together with a new block completed last year, this Plan would increase the number of flats by over 80% compared with the original estate.

A 17-storey tower (right by the highly-polluted A5 Kilburn High Road), plus four further medium-rise blocks – removing green space and a number of mature trees, encroaching on a playground – does that sound familiar…?.

 

Our Association has been arguing that this would be serious over-development; the draft Local Plan had a suggestion, with limited elaboration, of a project on less than half this scale. This Plan would transform the Estate’s character and there’s no clear evidence that it would respect norms of amenity space per resident. We have so far been denied sight of any of the surveys and analyses on which the Plan is supposedly based. An extract from a pre-Covid parking survey showed it had wrongly assumed Brent residents can park in neighbouring Camden!

 

As elsewhere in London, Brent cites housing need and its ownership of this land – but how does that justify ignoring the wellbeing of all the current residents?

 

The project team’s attempts at pre-consultation on the estate have been ineffective: poor uptake for “Resident Panels” and a low response rate to a questionnaire; and questions merely about design details, with the overall scale a taboo subject.

 

Unlike the Southwark project, this one is not yet at formal Planning Application stage.  So is there a ray of hope? Brent’s Cabinet Housing Lead has assured a local paper that “no decisions have yet been made” and the Director of Housing told a recent Scrutiny Committee meeting that Brent “would not want to force homes on anyone”; but there’s no sign of a resident ballot. Consultation with the wider community has been postponed while the Project team “review the designs”. That hardly sounds like a major rethink on the project scale… 

 

Yours truly

Keith Anderson

Kilburn Village Residents’ Association

 

For full information about the Kilburn Square proposal see  https://save-our-square.org/

 

Details of Brent's revised parliamentary constituencies: Brent Central, Kenton & Wembley, Hendon & Golders Green, West Hampstead & Kilburn

 

The first proposals from the Boundary Commission on revised parliamentary constituencies are published today. The constituencies that will cover parts of Brent are now Kenton and Wembley West, Hendon and Golders Green, Brent Central and West Hampstead and Kilburn. The red lines above are constituency boundaries and green the borough boundary. Only Brent Central is wholly in Brent. We would have four MPs rather than the present 3. A significant part of Kingsbury becomes part of the Hendon and Golders Green constituency. Harlesden becomes part of West Hampstead and Kilburn.

An 8 week consultation period ending on August 2nd starts today LINK


The proposals. Click bottom right square to enlarge. 

 

Follow these links for detailed zoomable maps:

Brent Central: https://boundarycommissionforengland.independent.gov.uk/wp-content/uploads/2021/06/2021-06-08-London-Initial-Proposals-7.-Brent-Central-BC.pdf

 

Kenton and Wembley West https://boundarycommissionforengland.independent.gov.uk/wp-content/uploads/2021/06/2021-06-08-London-Initial-Proposals-46.-Kenton-and-Wembley-West-BC.pdf

 

Hendon and Golders Green https://boundarycommissionforengland.independent.gov.uk/wp-content/uploads/2021/06/2021-06-08-London-Initial-Proposals-37.-Hendon-and-Golders-Green-BC.pdf

 

West Hampstead and Kilburn https://boundarycommissionforengland.independent.gov.uk/wp-content/uploads/2021/06/2021-06-08-London-Initial-Proposals-73.-West-Hampstead-and-Kilburn-BC.pdf

 

 

Sunday 6 June 2021

Brent Patient Voice call on NWLondonCCG to ask NHSDigital to pause 'concerning' GP data sharing process

 

The Tories have worked out how to pull off an NHS data grab: do it during a pandemic by Marina Hyde (The Guardian)

Brent Patient Voice has written to the Brent Representative on the Governing Board of the North West London Clinical Commissioning Group calling for a pause in the current process that would see the NHS accessing GP’s confidential individual patient data. This is the letter:

 

There is great concern among patient groups about NHS Digital’s new scheme for taking confidential patient data from GP records, with patients having only until 23 June to notify any wish to opt out and the vast majority having no inkling that this is the case. We understand that concerns on these lines were voiced at yesterday’s NWL Info Governance meeting, when members heard that doctors in NE London were refusing to co-operate with NHS Digital in view of the lack of information so far shared with patients about the effects of GPDPR and their options. There also seem to be practical issues for already overloaded GPs who are supposed to process confusing opt-out applications to be made on paper within a time window of 7 days between the closing date for patients to apply and the start date for extracting data of 1 July.

 

In our view 99% of patients would be unable to comprehend the information about this scheme and the opt outs currently displayed on the NHS Digital website. The interaction of a Type-1 opt-out with a National Data opt-out is obscure and, despite the alleged three years during which this scheme has been prepared in secret, does not appear to have been thought through. It leaves many questions in the air, including the relevance of any opt outs from personal data sharing which patients have made previously under the “Extraction” scheme or care.data. Nor is it clear how the paperwork is to be signed if it can be sent electronically. The ‘explanation’ looks as if it has been written by a committee, not all of whose members agree with each other.

 

What it does say is that personal data is to be “pseudonymised” which means that the person to whom it relates can be re-identified. This is inherently risky and no good reason is given for it. If the data is wanted for planning there can be no need to re-identify individuals. Furthermore we are told that the data collected and passed to NHS Digital will not be used “solely for commercial purposes”, which means that it can be used partly for commercial purposes.

 

We cannot see how such a distinction can be monitored. In any case this rushed secretive exercise risks not just the hugely trusted confidential GP/patient relationship, free to all, that is the jewel in the crown of the NHS and its success as a valued healthcare system, but it undermines trust in any properly legitimated data collection. Surely it is madness to put this at risk by arranging for the mass irretrievable transfer of sensitive personal data out of the control of GPs to commercial interests, particularly without the direct consent of the patient?

 

Can we therefore please ask you, the CCG, its PCCC and Brent GPs to send an urgent message to NHS Digital, NHSE and local MPs demanding a significant pause in the current process:

   a. to allow for a complete rethink on the scope and design of the scheme, noting that there is a fundamental difference between census-type data which is anonymised for 100 years and continually updated data relating to individuals;

b.   to require NHS Digital to prepare a proper information campaign about the benefits and safeguards involved, which can then be the subject of Parliamentary and public debate;

c.    to clarify and simplify the opt-out process;

d.   to give GPs the necessary support for informing all their patients directly and for handling the administration aspects of the process?

 

EDITOR'S ADDITION The current form to send to your GP to opt out of sharing your data can be found HERE

Bobby Moore Bridge “footballers” mural – Brent Council’s “final word”?

 Guest post by Philip Grant


Following my “open email” of 26 May, Carolyn Downs appears to have accepted that it would be unreasonable for the Council not to answer the strong case that I put forward, showing that there is no advertisement consent to cover the “footballers” mural in the Bobby Moore Bridge subway with adverts. 

 


 

Last Thursday evening, I received an email for the Council’s Legal Director, saying that ‘the Chief Executive has asked me to write to you this final time.’ I will set out the full text of that email below, so that anyone can read how some Senior Council Officers feel they can treat Brent’s citizens. Although Ms Norman considers the correspondence on this matter is over, there are some important things I wish to say in response to her, and I will say them here.

 

You might think that, because ‘a substantial amount of council resource has been devoted to considering the concerns’ I raised, I have been wasting the Council’s time. 

 

I have submitted Freedom of Information Act requests, to establish the facts behind transactions that Council Officers have failed to conduct openly and transparently.

 

I did make ‘a whistleblowing complaint’ when those FoI’s uncovered potentially fraudulent arrangements, which may have given a false impression that a “deal” done by Council Officers was “best value”. You’d have thought Brent’s Director of Audit & Investigations would be grateful for my bringing this to the Council’s attention!

 

I have written a number of letters to Senior Council Officers about this matter, but if those letters had been dealt with properly, from the start, the difficulty I drew attention to could have been sorted out much earlier. Unfortunately, it is a dispute which has still not been resolved.

 

Last month I suggested what I believe was a sensible way to resolve it, quickly and efficiently, through a small arbitration panel of our elected councillors. Ms Norman dismissively refers to this as ‘some sort of agreement between yourself and the council’. The reason she gives for that opinion is that ‘such an agreement would not include the holder of the legal rights’, but those “legal rights” only exist if the Council has given them and they are still valid. 

 

It’s a simple point, and I think that councillors are capable of considering it fairly, and deciding it on the basis of the facts and evidence. But if Brent wants to invite Quintain to have their say to an arbitration panel, I would have no objection, as long as they, like the Council and myself, agree to accept the panel’s decision.

 

If the dispute is resolved that way, we would not need ‘repeated correspondence.’ I’m ready to “put my cards on the table”, and will ask Martin to attach my ‘up to 1,000 words’ submission to the panel setting out why there is no advertisement consent for the footballers mural.

 

The Council’s Legal Director would prefer me either to “go away”, or ‘to consider what legal steps may be available to you.’ She would be prepared to spend £000’s on legal fees of our Council Tax money (some of which might be recoverable from me if the Council managed to “win” the case on some legal technicality), rather than have our dispute settled quickly and effectively by arbitration. 

 

There is no need to go to Court over this, but I think that is Ms Norman’s last line of defence for what can now be exposed, through the details set out in her email, as a very weak case in claiming that there is advertisement consent. The Council’s case is so weak, and based on a superficial reading of only some of the relevant documents, that Brent’s Legal Director should be ashamed to put her name to it!

 

I have accepted from the start that the consent given in August 2017 (13/2987) did allow the subway walls, including the footballers mural, to be covered with vinyl advertising sheets. Ms Norman claims that this consent remains in place for the “footballers” mural, but that is where her case goes wrong. You could only take that view if you ignore most of the evidence!

 

Council lawyers seem to fixated on the 2019 consent being for ‘the use of light boxes … for advertising purposes.’ They’ve assumed this must mean that application 19/1474 does not apply to the footballers mural, but all of the supporting documents and drawings for that application show that it does, and that this tile mural scene will be uncovered as part of it.

 

The email says that I rely on ‘on references to 19/1474 being a “replacement scheme”.’ Yes, and for very good reasons! The letter submitting the application says it ‘will replace the existing system of wall coverings (approved under ref. 13/2987).’ This is also supported by the Officer Report to the Planning Committee meeting in July 2019 which approved it, that says: ‘The current application seeks consent for a replacement scheme.’

 

You will note that I have used a primary evidence source here, backed up by secondary evidence from a report on what the application documents show. The Legal Director’s argument falls apart when she bases it just on that same secondary source (and ignores all of the original application documents as well).

 

“The advertisements already consented can be displayed irrespective of the outcome of this application” is a quotation from a summary at the start of the Officer Report. If whichever Legal Officer researched this had read the body of the report, or taken the trouble to consider the application documents, they would have realised that this statement actually means the opposite of what Brent now claims!

 

In para.15 of the detailed part of the Officer Report it says: 

 

Advertisement [consent] has also been previously granted for vinyl adverts over the tiles (also in a way that does not damage them), and should advertisement consent not be granted for the light boxes, the vinyl advertisements also could still be installed revealing less of the tiles than what would be visible under this proposal.’

 

In other words, the consent under 13/2987 would only continue to apply to the walls of the Bobby Moore Bridge subway if application 19/1474 was not approved. 

 

It was approved, and replaced the 2017 consent, both for the new light boxes, and for the footballers mural. The advertisement consent documents show that, including the “Statement of Significance” (see quotes from this in my document below) submitted because the murals were identified as a heritage asset. Additional confirmation is given in para. 11 of the Officer Report:

 

‘The Council’s Principal Heritage Officer notes that, given that the tiles are not a designated heritage asset, the proposals are a reasonable compromise. Officers therefore consider it appropriate that the plaque would be visible and the Twin Towers would be permanently exposed in recognition that they are part of Brent’s Heritage.’

 

The plaque in the footballers mural, below one of the Stadium towers.

 

It was a key part of Quintain’s application that they recognised there was a heritage issue over the tile murals in the Bobby Moore Bridge subway. While applying for consent to advertise on the light boxes, they committed to put the footballers mural back on permanent public display. That was an integral part of the consent given under 19/1474, with a majority of Planning Committee members approving it because it was seen as ‘a reasonable compromise.’

For some reason (potential profits?) it appears that Wembley Park’s commercial team, and a few Council Officers, are seeking to claim an advertisement consent for the footballers mural which does not exist.

I will send a copy of this “guest blog” to Brent’s Chief Executive, Carolyn Downs. I will ask her to decide, in consultation with the Leader of the Council, whether Brent should continue to hold to its false view over advertisement consent (and the disrepute this would bring, if the footballers mural is unlawfully covered with adverts when football fans come to Wembley for the Euros), or accept what the evidence clearly shows, that there is no such consent.

Philip Grant.

 

This is the full text of the email I received on 3 June:

 

Dear Mr Grant

 

 

The Chief Executive has asked me to write to you one final time to answer your most recent emails to her and to reiterate the grounds upon which the council considers that Quintain has advertising consent to place vinyl advertisements on the tiles of the footballers mural. 

 

 

The council’s position, and the reasons for that position are as follows, and have already been given. 

 

 

Consent to the placing of vinyl advertisements on the tiles of the footballers mural is given by advertisement consent 13/2987 [25 August 2017]:

 

 

‘Advertisement consent for eight “gateway advertisements”  comprising… .. 4 no. vinyl advertisements attached to the east and west tiled walls of the underpass and adjoining Olympic Way’

 

 

This consent in respect of vinyl advertisements remains in place notwithstanding the subsequent advertisement consent 19/1474 [22 August 2019] which relates to the use of light boxes for advertising purposes and does not permit the light boxes to extend over the footballers mural.

 

 

19/1474 does not expressly restrict reliance on 13/2987. 

 

 

I understand it to be your view that despite the lack of an express restriction, 13/2987 can no longer be relied upon in respect of the Bobby Moore Bridge and its underpass because 19/1474 gives consent covering the same area, except of course that it does not extend to the footballers mural.

 

 

You rely on references to 19/1474 being a “replacement scheme”.  As stated in my email to you of 9 April, although the applicant for consent 19/1474 stated the consent was sought as a replacement scheme to 13/2987, there is nothing in the 19/1474 consent itself which prevents reliance on 13/2987, to the extent that the two consents are compatible. Display of vinyl advertisements on the footballers mural pursuant to 13/2987 would not impede reliance on 19/1474 to use light boxes for the display of advertisements on the area permitted by that consent, which does not include the footballers mural.

 

 


I also note that the officers report considered by the Planning Committee on 16 July 2019 expressly states that “The advertisements already consented can be displayed irrespective of the outcome of this application.”

 

 

I think the council’s position and the reasons for it have been made very clear.

 

 

As the Chief Executive has pointed out, Quintain has indicated that it does not in fact intend to place vinyl advertisements over the footballers mural in reliance on the 13/2987 consent.  With reference to your email of 24 May 2021, this is an informal indication from Quintain and not a binding commitment, although the Chief Executive hoped it would provide you with some re-assurance.

 

 

Consent 13/2987 will expire on 22 August 2022, so next year.  As you have pointed out, the reference to re-tendering at the end of this year in the Chief Executive’s email of 24 May 2021 was an error, perhaps connected to the consent expiring next year.  She has asked me to apologise for the confusion.

 

 

Your most recent email of 26 May 2021 repeats your assertion that the legal position could be resolved by some sort of agreement between yourself and the council.  This suggestion ignores the fact that such an agreement would not include the holder of the legal rights in relation to the advertising consents and so could be of no effect.

 

 

As indicated at the start of this letter, the Chief Executive has asked me to write to you this final time.  In addition to the correspondence with myself and the Chief Executive you have submitted FOIs requests and a whistleblowing complaint.  These have been, or are being, responded to. As set out in my email of 16 April 2021, a substantial amount of council resource has been devoted to considering the concerns you have raised and the council is not able to agree with your view or to take the steps you wish.

 

 

If you consider that there is something legally wrong in how the council has proceeded, I would urge you to consider what legal steps may be available to you.  It is clear that the disagreement between yourself and the council as to the legal position is not going to be resolved through repeated correspondence and it is not appropriate that any more council resource be devoted to such correspondence.

 

 

Best wishes

 

 

Debra Norman 

Director of Legal, HR, Audit & Investigations