Showing posts with label Sickle Cell Society. Show all posts
Showing posts with label Sickle Cell Society. Show all posts

Tuesday, 5 March 2019

Three worthwhile projects to get Brent Neighbourhood CIL grants

It is a pleasure to give details of three Brent projects that, subject to Cabinet approval on Monday, will receive funds from the Neighbourhood Community Infrastructure Levy. Cabinet has to approve any NCIL grants above £100,000. Extracts below are from the report to Cabinet



Citizens Advice Brent (CAB) £248,000

CAB seeks to refurbish and transform its current premises to deliver a new Community Hub resource for residents of Brent. The Hub will be open to CAB partners and all residents of the borough; particularly the most vulnerable who form the majority of users.
The refurbished hub will provide: 
·      Expanded space - the space will be reorganised to offer public access PCs, brighter and more inviting interview rooms and a welcoming reception area
·      Reorganisation of facilities - including terminals for people to make online benefit and other claims, assisted by Digital Assistants to navigate a number of websites
·      Improved facilities - this will create a pleasant working environment for users and staff and improve the client experience
·      Improved Health & Safety- The refurbishment will make the premises fully compliant with Health & Safety and equality requirements; and
·      Environmental efficiencies - The project will be energy saving and improve the office carbon footprint.

CAB is based in the Willesden CIL Neighbourhood but provides services to all Brent residents. It is a registered charity (no. 1049632) and company (no. 3091835) where people access advice and support to manage a range of issues including welfare benefits, housing and homelessness, debt, employment and immigration. The Hub will also develop the skills of volunteers. 



The Sickle Cell Society 
£133,958

The Sickle Cell Society has operated in Brent for 40 years from 54 Station Road, Harlesden. This project aims to refurbish the current premises and create a new, fully accessible, ground floor space which will be used for sickle cell support and focus groups, events, and for individuals and families to drop- in for confidential support and advice. It will also be available for any local community organisations to meet. This will fill a local void in amenities for these groups.

Works will include: 
·      Lease of the neighbouring ground floor shop space and connecting this new space to the existing ground floor space
·      Developing the ground floor to offering expanded community access of the facilities; and
·      Creation of a new modern ‘shop front’ across both properties which will help to enhance the visual appearance of Station Road.

The Sickle Cell Society has secured the lease for 56 Station Road from its own resources and submitted a change of use application for the ground floor. Consent was granted in December 2018.

The Sickle Cell Society is a registered charity (no. 1046631) and company (no. 2840865). The current headquarters play a key role in educating people about the sickle cell and management techniques. Services delivered from the building enable those affected to better support themselves, empowers carers and provide peer forums. In addition to local visitors, the expectation is that the refurbished premises will be used to host growing numbers of visitors from the wider London community, across the UK and other parts of the world


 
St Catherine’s Hall 
 £150,000

St Catherine’s Hall, Neasden was burned down in a major fire in September 2018. Prior to that it offered one large community hall, which was used by seven regular hirers

An insurance payment will fund the restoration of the building as it was. NCIL funds are requested to increase the capacity of the building to accommodate more spaces for local community groups and to improve the visual presentation of the building on Neasden roundabout.

This project will provide the following additional facilities: 
·      Creation of a second floor - providing a second large flexible hall which can be divided in two with its own toilet and refreshment facilities
·      Creation of a new toilet and refreshments facilities, which will free up one room for two new small group meeting rooms; and
·      Creation of a visually striking foyer area which will make use of the hall easier but will also enhance the look and feel of the Hall site on Neasden roundabout.
·      All the new spaces will be available for hire by local community groups seven days a week. 

The hall is based in the Willesden CIL Neighbourhood but the expanded community facilities will benefit the whole borough.

NOTE

St Catherine’s are holding a community consultation on Saturday. The is the message that the vicar, Rob Harrison posted on The View from Dollis Hill Facebook LINK
Last September, St Catherine’s Church Hall was burned down in an arson attack. This year, we will be rebuilding it as a Community Hub for Neasden.

The key question is: what kind of Community Hub does Neasden need?


On Saturday 13th March there is an open Consultation Day to hear and share suggestions about what kind of facility we should build to serve Neasden for the coming decades.


If you would like to take part in this consultation, please reply to this post. 


The Consultation day begins at 10.30am on Saturday, and will finish at 3.00. Lunch will be provided for those staying for the whole event.


The morning session will focus on the kind of building that Neasden needs. The afternoon session will focus on the kind of resources that will be needed in that building.


The voice of local residents is vitally important to helping us build what Neasden most needs.


He added the following note today:


A call to Polish and Romanian members of our community. 

At present, over 40 people of our local communities have booked in to take part in the Community Hub Consultation at St Catherine’s Church on Saturday (10.30am - 3pm). Looking at the list of names, there is no representation of the Eastern European communities who are an important part of our Neasden Community. As we seek to build a Community Hub for Neasden, it is important that as many local needs as possible are expressed and heard. If you know people who could bring a perspective from those parts of our community, I would be delighted to include them in our consultation.


Wednesday, 30 May 2018

Bravo! Sickle Cell Society's enormous achievements recognised with national award


Wembley Matters some time ago covered  the campaign against the Brent CCG's decision to end funding for the Harlesden based Sickle Cell Society's local  advice and support project LINK  so I am delighted to post this news direct from the Society's website:
We have beaten more than 350 organisations from all over the UK to be one of the eight winners of the 2018 GSK IMPACT Awards, a national award that recognises charities that are doing excellent work to improve people’s health and wellbeing. We received £30,000 in funding as part of the prize, as well as expert support and development from The King’s Fund at a ceremony held at the Science Museum in London on the 17th May, along with seven other GSK IMPACT Award winners.

An estimated 15,000 people in the UK have sickle cell disorder (an inherited blood disorder mainly affecting people of black African and African Caribbean heritage). The condition can cause chronic fatigue, pain, damage to vital organs and leads to early mortality.

The award recognises both our community-based services and our influence on national policy. Lisa Weaks, Head of Third Sector at The King’s Fund, said:
One of the impressive things about the Sickle Cell Society is that it is offering services at a community level but is also able to influence national policy. It has been instrumental in establishing national standards for the care of people with sickle cell disorder while ensuring these are firmly rooted in community needs.
Our other services which were praised include our national telephone helpline which offers support and information, our mentoring scheme for younger people with the condition and our Breaking Down Barriers outreach programme which targets people from Portuguese-speaking and French-speaking communities.


They also noted our guidelines on blood transfusions which we produced in 2016 that focused on improving the experience of people with sickle cell disorder by causing less discomfort and improving efficiency. It is estimated that this could save the NHS £13 million per year. As well as this, they praised our work to improve screening of pregnant women at risk of having a child with sickle cell.

The Society’s Chief Executive, John James, said:
I was absolutely delighted to find out we had won. Over the past five years we think we have been doing great work with patients, their families, and our partners in the NHS, NICE [National Institute for Health and Care Excellence], and industry and so it is really good for that to be recognised.

It is fantastic recognition that we are doing good work for people with sickle cell disorder, and I am sure it will further enhance our reputation in the sector. For funders it sends the message that we are delivering value for money. The leadership support will also help us to chart the next stage in our journey.
Developing leaders in the charity sector is an important aim of the GSK IMPACT Awards programme, which has now been running for more than 20 years, and the Society will have access to training and leadership development tailored to our needs. We will also be invited to join the GSK IMPACT Awards Network, a national network of almost 80 award-winning health and wellbeing charities working together to develop their leaders, find new ways of working, and support others.

Thank you to all those who support our work and who work tirelessly to help improve the lives of those living with sickle cell.

You can find more about the awards here: LINK


A spokesperon for Brent Patient Voice said:
Brent Patient Voice (BPV) is delighted to congratulate the Brent-based Sickle Cell Society on being one of eight national winners in the GSK Impact Awards 2018, along with a prize of £30,000. This was in recognition of its work with the local sickle cell community and its influence on national policy. We find the award rather ironic in the light of the withdrawal of funding by Brent CCG in 2016 for the Society’s promising local support and advice project - a decision strongly contested by BPV.

Tuesday, 13 December 2011

Hospital Merger Plans Challenged

36 people turned up at the Sattavis Patidar Centre, Forty Avenue last night to discuss the proposed merger of Ealing and North West London Hospitals Trust (covering Central Middlesex, Northwick Park and St Mark's hospitals). This compared with 100 at the recent Ealing meeting and a 'client' base of 800,000 people.


Professor Rory Shaw, Medical Director, made the case for the merger. The organisational merger would enable the joint Trust to have larger specialist teams which would be more viable than the present small teams, enable shift-work to take place and would attract high calibre staff Economies of scale would mean the Trust could keep pace with developments by buying up to date equipment and make resources, including scanners and operating theatres 'work harder' and the buildings 'earn their keep'. 

He said that Northwick Park's  stroke care unit was a good example of the merits of large, centralised teams and had led to better survival rates and fewer cases of paralysis.


Although the Chair of Brent LINk (Local Involvement Network) had stipulated that the meeting was not to discuss services, Shaw said that the merger was being proposed against the consultation on the commissioning of services that would take place in Summer 2012.  The focus would be on prevention and long-term conditions and more care and treatment in the community. He claimed that the latter was bothe cheaper and more effective.


He said that the move was taking place as a time when there was a general recognition that bigger was better. Other speeches from the six suited males on the platform extolled the merits of 'an army of generic workers', with an implication that these might be volunteers, who could help patients at home with hospital-home transition. We were treated to the management  mantra 'Localise where possible, centralise where necessary'.


Challenged that the presentation had not mentioned the financial plight of the NWLH Trust and that the merger proposal was a cover for cuts, the platform said that there was a financial saving involved of £7m and that this was specified in the Business Plan. Savings would be made in management and through reduction in 'back office' costs. Asked if  'developing the estate' meant selling off prime sites, especially in the light of the apparent running down of the Ealing and Central Middlesex hospitals, they said that sell-offs were not in the Business Plan but 'there may be scope for that in the future'.

Carers criticised the emphasis on volunteers and a speaker from the Sickle Society was concerned about the speed of the changes and poor consultation with users. He said that there had not been sufficient consideration of the needs of people with Sickle Cell and Central Middlesex Hospital's historic role in providing specialist care.

The platform was challenged on the implications of patients having to travel further for treatment and concern that the disadvantaged population of South Brent would be further disadvantaged if Central Middlesex was run down. Health inequalities would increase. A speaker from the floor made a strong demand for a Equality Impact Assessment. Despite repeated requests the platform were un able to advise which bus patients should get from Harlesden to Northwick Park Hospital.

Behind it all was the implication that larger teams would mean each site would have different specialisms which would not be offered at other hospitals in the Trust. The platform argued that routine care would still be provided at each hospital. A question asking if the new arrangements would be able to cope with a 'major incident' in South Brent with its many railways, the North Circular, waste sites and commercial premises; was not answered.


Brent LINk will be putting together its response and you can contribute: brentlink@hestia.org Tel: 020 8965 0309. Brent LINk Unit 56, The Designworks, Park Parade, Harlesden, London, NW10 4HT

Harrow LINk will hold its own consultation:
HARROW LINk: Thursday 12 January 2012. Registration and refreshments from 5.30pm. Event starts at 5.50pm and will close at 8pm. Premier House Banqueting, Canning Road, Harrow, HA3 7TS. Places are limited. If you like to attend please contact Harrow LINk at info@harrowlink.org.uk
or call 020 8863 3355.


TIMETABLE
November 2011 Outline Business Case for merger signed off by NHS London
March/April 2012 Full Business Case approved by the Trust Boards and NHS London
May 2012 Submission for approval by Department of Health Transaction Board
July 2012 Merger takes places
Autumn 2012 Commissioning of Services

Shahrar Ali's report on the meeting is HERE