Wembley Matters some time ago covered the campaign against the Brent CCG's decision to end funding for the Harlesden based Sickle Cell Society's local advice and support project LINK so I am delighted to post this news direct from the Society's website:
We have beaten more than 350 organisations from all over the UK to be one of the eight winners of the 2018 GSK IMPACT Awards, a national award that recognises charities that are doing excellent work to improve people’s health and wellbeing. We received £30,000 in funding as part of the prize, as well as expert support and development from The King’s Fund at a ceremony held at the Science Museum in London on the 17th May, along with seven other GSK IMPACT Award winners.
An estimated 15,000 people in the UK have sickle cell disorder (an inherited blood disorder mainly affecting people of black African and African Caribbean heritage). The condition can cause chronic fatigue, pain, damage to vital organs and leads to early mortality.
The award recognises both our community-based services and our influence on national policy. Lisa Weaks, Head of Third Sector at The King’s Fund, said:
One of the impressive things about the Sickle Cell Society is that it is offering services at a community level but is also able to influence national policy. It has been instrumental in establishing national standards for the care of people with sickle cell disorder while ensuring these are firmly rooted in community needs.Our other services which were praised include our national telephone helpline which offers support and information, our mentoring scheme for younger people with the condition and our Breaking Down Barriers outreach programme which targets people from Portuguese-speaking and French-speaking communities.
They also noted our guidelines on blood transfusions which we produced in 2016 that focused on improving the experience of people with sickle cell disorder by causing less discomfort and improving efficiency. It is estimated that this could save the NHS £13 million per year. As well as this, they praised our work to improve screening of pregnant women at risk of having a child with sickle cell.
The Society’s Chief Executive, John James, said:
I was absolutely delighted to find out we had won. Over the past five years we think we have been doing great work with patients, their families, and our partners in the NHS, NICE [National Institute for Health and Care Excellence], and industry and so it is really good for that to be recognised.Developing leaders in the charity sector is an important aim of the GSK IMPACT Awards programme, which has now been running for more than 20 years, and the Society will have access to training and leadership development tailored to our needs. We will also be invited to join the GSK IMPACT Awards Network, a national network of almost 80 award-winning health and wellbeing charities working together to develop their leaders, find new ways of working, and support others.
It is fantastic recognition that we are doing good work for people with sickle cell disorder, and I am sure it will further enhance our reputation in the sector. For funders it sends the message that we are delivering value for money. The leadership support will also help us to chart the next stage in our journey.
Thank you to all those who support our work and who work tirelessly to help improve the lives of those living with sickle cell.
You can find more about the awards here: LINK
A spokesperon for Brent Patient Voice said:
Brent Patient Voice (BPV) is delighted to congratulate the Brent-based Sickle Cell Society on being one of eight national winners in the GSK Impact Awards 2018, along with a prize of £30,000. This was in recognition of its work with the local sickle cell community and its influence on national policy. We find the award rather ironic in the light of the withdrawal of funding by Brent CCG in 2016 for the Society’s promising local support and advice project - a decision strongly contested by BPV.