How to opt out of the NHS care data scheme

At a meeting last night I couldn't find anyone who had received their letter about the sharing of individual's medical data so it is good news that implementation has been delayed for six months.

There are concerns about the security of the system and its possible misuse. This was discussed in the Guardian 18 months ago: LINK

If you decide you want to opt out of the system, which is your right, Fax Your GP Com LINK have set uo an easy facility. This is what they say:

We’re a very small group of volunteers who think it should be very easy for people to opt out of the new NHS care.data centralised database of medical records.

Unless you opt out now, care.data will soon store the medical records of everyone in England, yours included, in one giant database.

Our confidential health information will then be shared with companies and other public bodies.

Some people we respect think care.data is, on balance, a good thing.
Some people we respect think care.data is, on balance, a bad thing.

What we know for certain is that the NHS hasn’t made it easy for you to exercise your right to opt out. We think this really isn’t wise.

The NHS leaflet explaining care.data says you should ‘let your GP know’ if you want to opt out.
But GP surgeries are busy. If you ring up wanting to opt out they’ll ask you to write to them instead. That’s fair enough – their priority is treating the sick.

It’s 2014. The NHS really should have made it easy to opt out via the web.
So we thought we’d help out.

First, we found the fax numbers for every GP practice (sadly, very few let you email them). After you’ve entered your details, our clever computers automatically fax your letter asking to opt-out of the care.data database straight to your GP practice.

It’s free. It’s secure. And we don’t store any of your personal data once your opt-out fax has been received by your GP. So we won’t email trying to sign you up for other campaigns.

Sadly we can’t make any 100% watertight promises that this site will always work. Your GP’s fax number might be listed incorrectly on the NHS website, for example.

So if you want total reassurance, it might be best to print out an opt out letter and pop it round to your GP yourself.

However, we have done this sort of thing before, and so know it works well. Back in 1999/2000 some of us built FaxYourMP.com, to make it easy for people to contact their MP, since in those days most MPs didn’t publish their email addresses. A bit like GPs, today, in fact.

We didn’t expect to have to resurrect a similar service nearly 15 years later. Frankly, we shouldn’t have had to, but needs must.

— Stef Magdalinski and friends.

The Keep Our NHS Public leaflet downloadable below contains an opt-out letter you can take to your GP:

Brent activists join nationwide demonstrations against ATOS

 

In the 8am chill this morning activists from Brent demonstrated outside the offices of ATOS in Neasden Lane as part of a nationwide protest against the impact of ATOS assessments on disabled and unwell claimants. Individuals came from Kilburn Boycott Workfare, Kilburn Unemployed Workers, Unite the Community, Brent Green Party and Brent Fightback.

Motorists and pedestrians passing by were generally sympathetic and warmed our hearts if not our fingers.

This is from the organisers' website:

Statement of Intent – We oppose the reported ill-treatment by ATOS of those receiving sickness benefits. We are calling for the abolition of the Work Capability Assessment which is not fit for purpose. We believe that a qualified medical doctor, ideally the GP who regularly sees and treats the sick or disabled individual in question, is the only person able to decide if an individual is fit for work. These peaceful demonstrations will include a minutes silence at 1pm to honour the victims of Iain Duncan Smiths callous reforms.

On February 19th protesters will gather peacefully at the locations used by ATOS to carry out the discredited Work Capability Assessments. Many will provide a live stream which can be viewed on the campaigns webpage http://ukrebellion.com/atosdemo/. The event has attracted a wide range of high profile speakers from politicians to celebrities. The largest demonstration is taking place in the ATOS Head Office, 4 Triton Square, Regent’s Place, London, NW1 3HG London, United Kingdom from 10:00 to 16:00and included the following speakers

Ian Jones – WOW Petition
Paula Peters – DPAC (Disabled People Against Cuts)
Theresa Coles – Atos Miracles
Natalie Bennett – Leader – Green Party
Sonia Poulton – Journalist
 
Natalie Bennett said:

ATOS activities in the UK are a further, dreadful, example of the government’s failed outsourcing experiment. They have inflicted misery and fear on millions of people, and this must end. The medical professionals who treat them are the people who should decide on individuals’ capacity to work. We shouldn’t be pumping public money into the private profits of this health multinational. And we should remember: behind ATOS is the callous government policy of cutting social security payments to vulnerable people. We must ensure everybody who needs social security payments receives enough for a decent quality of life.

Caroline Lucas Green MP for Brighton was speaking at the demonstration planned in her constituency. She said:

Outsourcing the assessment of sick, disabled and vulnerable people to a private corporation, and especially one with such a disgraceful track record as Atos is disgusting…. Ministers have so far refused to take action to get rid of ATOS and their thoroughly discredited Work Capability Assessments. The day of action on February 19th is a chance to stand strong together against companies like ATOS until they are a thing of the past. I’ll be there and will do what I can to keep the issue alive in Parliament.

In Hull Labour MP Karl Turner MP and Green party Chair Martin Deane will attend and speak.

ATOS are clearly worried about the impact the demonstrations will have on their already tarnished reputation. One central claim they make is that

“We have no targets in relation to the outcome of benefit claims either at an individual or overall level.”
http://blog.atoshealthcare.com/2014/02/protests-targeted-at-atos-healthcare-assessment-centres-on-19th-february/

This clearly flies in the face of the revelations made by whistle-blower Greg Wood who lifted the lid on the toxic culture in the organisation and the recent report published by the centre for welfare reform “How Norms Become Targets: Investigating the real reason for the misery of ‘fit for work’ assessments” by Kaliya Franklin which demonstrates how targets to find people fit for work regardless of their individual circumstances have taken root in the organisation.

Tell them what future you want for Central Middlesex Hospital tomorrow

Following the decision to close the A&E at Central Middlesex Hospital a question mark still hangs over its future and the future of Willesden Centre for Health and Care. Millions have been spent on the PFI scheme for Central Middlesex and Willesden has only fairly recently been revamped.

At the extreme of possible decisions either site could close but there are other options in between including shifting some facilities from Willesden to Central Middlesex, and the mental health facility at Park Royal into the main hospital, as well as the GP/Dental surgery on Willesden High Road, moving to the Willesden Hospital site.

There is a possibility that some of the Willesden site will be sold off for housing. Come to the meeting at the Brent Civic Centre to find out much more about what may happen and have your say.

Green Party Education Policy offers a real alternative

I will be moving a motion revising the Green Party's Education Policy at our forthcoming Spring Conference. The revisions take account of recent developments in what has been termed GERM (the Global Education Reform Movement) and the various campaigns that have sprung up as a result of privatisation, forced academisation, test led curriculum and pedagogy and the attack on teachers; conditions of service.

The full briefing paper on the motion can be read HERE. This extract sets out the background:

Since the current Education Policy was written there has been much change in the direction of education both nationally and globally. What has become known as GERM (the Global Education Reform Movement) emphasises competition between schools and between countries, education’s contribution to global economic growth and competition, the provision of a ‘market’ in education with increasing involvement of private companies, a narrowing of the curriculum through a concentration on basic subjects that can be measured through standardised testing, and a convergence between the world of work and education. 

In England the three main parties, to varying degrees, support this movement, which has resulted in the promotion of free schools and academies, the increasing role of private companies not just in sponsoring such schools but also in the provision of curriculum and learning materials. Companies such as Pearson and Murdoch are poised to exploit this situation. Testing at the age of four is now being mooted as well as the existing Phonics Screening Test at six, Key Stage 1 SATs at 7 and Key Stage 2 SATS at 11. In the secondary sector there is a huge emphasis on examination results. Test results are used by Ofsted as the first measure for judging school performance and schools spend an enormous amount of time analysing and ‘interrogating’ the data. A blip in these results can lead to a local authority school being forced to convert to academy status.

The paradox is that increased centralisation and the granting of unprecedented powers to the Secretary of State for Education, in this government and any successor, have accompanied the rhetoric about setting schools free from local authority ‘control’ through academies and free schools. Currently the micro-management of schools by Michael Gove has extended to advocating particular policies on behaviour management. Peter Wilby has described the situation thus:

Michael Gove is on course to complete what Kenneth Baker began… the creation of a fully centralised school system in which the secretary of state for education has the powers of an elected dictator.

The agreement between the three main parties on this gives the Green Party the space to offer a completely different approach based on our underlying principles:

• Our rejection of the economic growth agenda and the accompanying international economic competition enables us to have a broader interpretation of the aims and content of education.
• This in turn enables us to reject the narrow curriculum, testing regimes and league tables associated with the GERM model and to put forward a child-centred approach taking account of child development, especially in the early years.
• Our belief that decisions are best made at local level rather than by centralised diktat means that decisions about curriculum (apart from a broad entitlement) and pedagogy are made by teachers and the school community rather than the Secretary of State.
• This enables diversity and creativity to take place within the state funded local authority school system, which will have the effect of empowering teachers and developing their professionalism rather than deskilling them.
• Our belief in cooperation rather than competition means that we put forward collaborative models of school improvement including school to school support and a partnership role for an independent inspection service informed by educational research/
•  Our support for increased democratic accountability at a local level involves improving the representation of parents and pupils within schools and democratic accountability through local authorities and removing the excessive powers of the Secretary of State.
• Our commitment to social justice means that we put forward policies that support fair admissions and fair funding of schools and inclusion of children with special needs.

Brent Executive to discuss £18m budget cut tonight

The Brent Executive will tonight discuss a budget reduction for 2014-15 of £18m that will go before Full Council for final approval. This is achieved through a mixture of reduction in services, out-sourcing, adminstrative savings and increased fees.

The 'savings' are in the following service areas:

Adult Social Care £4,450,000
Children and Young People £3,157,000
Environment and Neighbourhoods £3,412,000
Regeneration and Growth £2,729,000
Corporate Service £4,081,000

Full details are here:

The Executive will also discuss proposals on council rent increases which average 3.7% or £4.53 per week per dwelling with higher increases for larger properties. Full details HERE

Feisty parents fight off forced academy conversion

In a victory that may have wider repercussions for schools facing forced academisation, St James' Church of England School in Gloucester have been told that it will not face academy conversion for the foreseeable future.

Parents at St James' have been campaigning vociferously over the issue. Recently Michael Gove has not be very pleased with Ofsted Inspection reports that have noted forced academisation takes schools' attention away from getting out of special measures. The problem is referred to here.

A letter from the school on February 12th stated:

Since receiving the Academy Order which was referred to in my last letter, the governing body, Local Authority and Diocese have collectively sought approval from the Department for Education (DfE) to defer the academy conversion process for the foreseeable future. I'm please to be able to tell you that yesterday we received formal notification that the request has been approved.

The specific reasons for the agreement is that the DfE have acknowledged that the school needs to prioritise coming out of special measures and would have been distracted from this by the amount of administration involved in academy conversion. In addition, the Local Authority has yet to complete its audit which determines whether additional school places may be needed in the city for 2016 and beyond.

Governors acknowledge that some parents have expressed their concerns about academy consultation. Please be assured that all parents, as well as other local stakeholders, will be fully consulted about future plans for thye school once the Local Authority have undertaken this work. 

The letter goes on to invite  parents to hear about the latest HMI monitoring report at the meeting which was to be held about academy consultation.

The letter concludes:

We do hope that as a community we can now all collectively focus on the immediate priority - to ensure that St James' moves out of 'special measures' and appoint a sunstantive headteacher with the energy and ambition to ensure that St James' is the school of choice for parents in this locality. 

The St James' Campaign  Facebook was jubilant with this heartfelt message posted about one of the leading campaigners:

You are a true inspiration to others your drive passion and fight for a cause you believe in have done you proud you are a woman to aspire too who has gone to extraordinary lengths to fight for Save St James....since September you took this on as a full time job as well as being a full time mum and all the voluntary work you do to help others...even when you were at your lowest point kicked in the teeth by the very people that are in charge of our children you never gave up hope...may your children also see you for the remarkable strong and dedicated woman that you are...a true fighter to the end!!!! so proud of you and may many children benefit from this x x

Congratulations. I hope Brent and other local authorities and governing bodies will note the importance of standing together against forced academisation and getting behind parent campaigns..

Temporary classrooms at Mahatma Gandhi House?

According to a report going before Brent Executive on Monday, Mahatma Gandhi House, vacated by Brent Housing Service, could be used to house primary school pupils.

The report outlines a number of options to provide temporary extra places in schools and at the vacated Pupil Referral Unit in Church Lane, Kingsbury. The council will prioritise provision on school sites first but state:

Mahatma Gandhi House is considered as meeting the criteria providing a managing school could be identified. It is in an area of high demand but as the priority is to provide school places on school sites; officers propose to undertake a feasibility study and to discuss matters with the landlord, but to prioritise school based options first.

The nearest primary schools are Elsley, St Joseph's and Park Lane. A  managing school would also be required for the Church Lane PRU and the nearest school, with building work for permanant expansion just completed, is Fryent Primary.

The report is only about the provision of additional temporary  'bulge classes' or satellite classrooms but a full report on the permanent  expansion of schools to add forms of entry will be presented to the March Executive.

Table 3: Summary of Pupil Projection Increases by Planning Area 2013-2019

Planning Area,  Number,  Percentage Increase

1 Kingsbury 1172 34
2 Preston 751 17
3 Wembley Central 1534 27
4 Harlesden 901 22
5 Kilburn – Dollis Hill 525 6

Total 4883

London Green Party calls for action to end London’s housing crisis

 Green Party leader Natalie Bennett will tomorrow highlight the desperate shortage of affordable housing in London in a protest outside Mount Pleasant development in Islington

 

The party says this new development of 700 private flats is symbolic of Mayor Boris Johnson’s strategy of prioritising homes for the super-rich whilst ordinary Londoners are priced out of their homes.

 

Natalie Bennett commented:

Boris Johnson is once again riding roughshod over the people of London by privileging the profit of a developer over the need to provide ordinary Londoners with affordable homes. By providing only 12 per cent affordable housing in the new development, he's failing to allow for the development of a balanced community. He's not providing homes for the teachers, police officers, cleaners, and many other people who serve our communities, but setting up big profits for property speculators and private landlords. This public land should be put to community use with genuinely affordable council housing. That is why I ask all those who feel that it is time for change to join us Islington on Saturday 15th February from 10am.

Research from the Mayor’s office shows that, despite the rise in homelessness and overcrowded housing in London, two-thirds of all newly built properties are being sold to investors – pushing up prices even further. The party argues that the Mayor’s strategy of marketing new properties to rich investors is completely inappropriate for a city where the median house price is now three times the affordable limit for the average household.